Posts Tagged ‘jaw surgery’

Well it has been quite an exciting couple of days. If you are still following you know that Evan FINALLY had his last surgery on Tuesday!!! Big yay!

I’m going to recap the following days and post a picture for all to see!

We got to NYU at about 11 for 12:30 surgery time but of course nothing ever goes according to plan! Evan’s surgery started officially at about 2:30 after a consultation with the surgeon where he went over the surgery. He reminded us this is the easiest of the three he has had and it should take about 2- 2 1/2 hrs and afterwards a small part of his lips will be sewn together for a week to keep the blood flowing to the relocated part of his upper lip. Of course we knew all this already but a quick overview was great to calm nerves! After they took his back (with one last kiss with his “old lips”) his parents and I waited…. and waited… and waited. At the 4 hour mark we got antsy, at the 5 hour mark we got nervous and at 5 1/2 hrs we demanded to know what was going on. His father eventually found a nurse who called down to the OR (considering it was almost 8 pm!!) and found out that everything was “ok” he just was finishing up. Dr. Warren finally came out at about 7:55 to tell us he was done. Evan had a lot more scar tissue than expected and because of that it took longer to get through. He also wanted to make it “perfect” so he redrew the lines for about an hr before he started the procedure. All acceptable reasons to take longer (and we certainly appreciate the perfection) but some communication with us would have been GREATLY appreciated!!!!

Now we all know Evan does NOT like to wake up from surgery easily, this time was no exception. He stayed in post-op recovery until 11:40 ish and while he didn’t throw up this time (yay!! It was our goal to control it BEFORE leaving the hospital this go around) he did remain super groggy the rest of that night. We were able to take him home that night!

Unfortunately I wasn’t able to get another day off of my rotation so I couldn’t stay the next day with him, but he did ok! No throwing up, minimal pain but still bleeding a little. That was the only concerning item of the day, besides exessive drowsiness (but that was expected!) Today being Day 2, Evan is much more awake, in less pain but his nose is stuffy and he is still dripping blood. When I got there after my day I was able to help him take a bath and he seemed to feel better. He wrote to me on his phone that this recovery is a little easier than the past two, but very annoying with lips sewn shut and the dripping. We’ve been putting medicated ointment on the stitches, which he has under his nose, two strips down to his lips and a “y” shaped area on his bottom lip and of course all inside his mouth as well as outside, but the ointment makes the blood cake on his chin and his in hair (sorry for the graphics!)

For now we are really only concerned about the bleeding and hope it starts to clot more. Tomorrow I might call over to his doctor before the weekend and just get his opinion!

Sorry for the lengthy post, but here’s a picture for the end!! I’ll update again over the weekend. Thanks for all the loving support for Evan, I know he appreciates it all.




Just wanted to share my favorite book from this summer. This video is from the author and reminds us to “choose kind.” I loved the message and I loved reading the book. Thought it was an appropriate post from this blog in particular ;]

So it is about a week and a half after my nose surgery last Tuesday and I had my nose splint taken off this past Monday. I will say that this recovery has been a lot more smoother and not as bad as my jaw surgery. After my surgery the pain was not that bad and I did not have to take any actual pain medication till that night and parts of the next day. The biggest problem with me recovering after this surgery is that after I got home from the hospital, because I absolutely did not want to spend the night at the hospital, I got nauseous and eventually started to throw up which continued throughout the night but ended the next day. Of course when I was throwing up I was throwing up all of the blood in my stomach but also because of me throwing up I caused some pressure in my nose which caused me to bleed a little bit from there but no harm was done.

I have to say I was extremely happy that Genna was there. I told her that as soon as I got out of surgery I just wanted to hold her hand. It was all I wanted after my last surgery and it is what I wanted after this surgery too, it may seem silly but it made the world of a difference after each one. I just wanted to hold her hand and not let it go. She also came over the day after my surgery and held my hand as I basically slept but the fact that I knew she was there made me happy. I also have to say I am really proud of Genna and it made me so happy that I was able to see her before my surgery this time. She made it all the way to the hospital and upstairs and was able to see me before I went into surgery. It really did mean the world to me and I will say that right before I went into surgery I gave her a kiss and told her I loved her and handed her a note saying some sappy things like I did before my last surgery also. I wish that I could have given her a longer kiss but my parents and the nurse were right there and I did not want to embarrass Genna or make her uncomfortable haha.

My nose is still stuffy with all the dried blood from the surgery (I know it sounds oh so pleasant haha) but everything is healing up nice and good, I am still a little swollen but again the most annoying part of it all is that I am still stuffy with all the gunk and stuff in my nose. Also during the surgery they had to cut a nerve that runs up your nose so for the time being I have little to no feeling on the tip of my nose which feels really weird. That is basically all that has been going on and I will post again soon but for now here are some post op pics!

Couple of days after surgery!











Welp I haven’t posted in awhile and since Evan’s next surgery is less than a week away I figured it was time! Just when we think things are finally getting back to normal and used to Ev’s new look, it will change again. Although this time is much less of an external change and more of an internal change, it will still be a change.

In the past couple of months as Evan has been adjusting to his new jaw, so have I. Apparently he has had an easier time than I have! Go figure! About a month or two ago (warning tmi!) we were kissing and I had to stop him because I thought he was kissing weird. I felt like I was kissing an entirely different person. The way he was kissing was different, our noses didn’t fit together, his lips felt different, he attacked me with his braces (they never bothered us before because his top teeth were too far back to touch any part of my mouth) and he looked different of course. Being a typical girl, I didn’t say anything at first but he could obviously tell I was upset and it took awhile to get the truth out. I didn’t want to upset him because he had worked so hard for this surgery and I didn’t want him to think I didn’t like the outcomes. Yes he looks different, but he is still my same Evan and I told him that way before he even had the surgery. My minor internal freakout slowly turned into an external cryfest! Fortunately Evan understood as I tried to explain that I was not unhappy with the surgery, just adjusting to the changes. I’m not sure why it took me almost 5 months to feel this way, but I have a feeling it is perfectly normal. My boyfriend had major surgery, changed his appearance, of course I was allowed to have a freak out! I’m actually glad it happened later in his recovery because before that I was trying so hard to make things easier for him, so maybe it was better it worked out this way. Ok enough of my rambling about past surgeries because now we must focus our energy on the upcoming one!

Luckily I was actually able to get off of camp for both the 16th and 17th so I can be there for Evan’s surgery. Maybe this time I will actually make it into the room (if you missed that post after Ev’s jaw surgery- I was so nervous beforehand I couldn’t make it into the pre-op room last time) If I don’t make it in again, at least I can be there right after he gets out (which I made it for last time!) Unfortunately our best friend Brittany (who kept me sane last time) moved to her dream job in Indiana and won’t be there this time, so I’ll be hanging with Evan’s parents!

I’m sure we will be posting more as things get closer, some more pictures of Evan pre and post op, from jaw surgery and this one!

Thanks for sticking to read this blog, I know it’s been awhile but there’s still a lot more to go! Thanks to all who have supported Evan, especially as he starts surgery number two!!

– Genna

So since my last post I have started to get some more feeling back in the roof of my mouth but not a lot, it is still mostly on the right side. I still have little to no feeling in my top gums which in a way is good and bad. I still have to wear rubber bands on my teeth and they sometimes snap and hit my upper gums but since they are still numb I can’t feel what would be an extreme amount of pain :P. As far as my appointments go they have just been simple, they are still trying to get my molars to touch. Apparently I had broken off or loosened a bracket and had no idea about it until I went to my last appointment and told them I was still hitting my lower brackets with my front teeth. They simply reattached the bracket and I left with them telling me to continue wearing the rubber bands as I have been all the time except when eating.

On another note I am realizing how close my other surgeries are getting and in less than a year I will be completely done with all my surgeries hopefully. I am paying more attention to my nose and trying to think of how and what I want to change about it. It is difficult to put into words or without physically being next to someone to show or explain the ideas of what I want so for the time being I guess everyone will have to wait on that. I will say that I am starting to get excited about being so close to having everything done and that these adventures are almost over. I am not crazy about having my nose be numb and everything being bloody and swollen (I know such a lovely picture to imagine) but like everyone keeps saying after it’s all over with hopefully I will be happy with the out come.

I will try and post some pictures after my next appointment which is in 3 week but until then I am busy celebrating my great grandma’s 105th birthday, being a handsome young date for Genna to several events that she has to go to :P. I am extremely excited for the times to come and for once in my life time I am slowly starting to want to show off my smile, slowly for now at least haha šŸ˜‰ after everything is done I am sure I will be even more willing to.

So this will probably a short post but yesterday I was randomly running my tongue along my top gums and I actually felt it on my gums! To make sure I actually was feeling something on my gums instead of on my tongue I ran my fingers over the exact same spot and sure enough I felt it, although it was barely anything; almost a none existent feeling but it was there and I still felt it haha. It would be extremely nice to have my feeling back on my top jaw, biting into food is interesting since I can’t really tell when my teeth touch and things like that (it’s hard to explain). I am excited though that I am SLOWLY getting feeling back, Dr. Warren said it would take anywhere from 3-18 months to get feeling back or that I may not get any feeling back at all.

As for how other things are going, I still get tired but not as easily anymore which is a good thing since I am just finishing up my midterms and then on to finals at school (YAY to be able to drink soda again). I am still trying to figure out what I want to do about my nose and if I really want to change it at all besides fixing my deviated septum although in all honesty I probably wont change much. I think the biggest surgery that will make me look completely different is the Abbe Flap surgery, I personally think it will change how I look more then the jaw surgery did but Genna doesn’t think that haha, only time will tell :). Oh the adventures that are still left!

I Got A Feeling WOOOHOOO!!!


Well it seems like I am the designated pictureĀ up-loaderĀ  Which I guess makes sense since I take all the pictures! In the past week Evan finally got his splint out! To say YAY is definitely an understatement. I feel like this post will have way too many exclamation points, but this is an accomplishment and a turning point for Evan- so they are well deserved!!! We spent the morning in the city, waiting for his appointment. The night before it was supposed to snow, and so the joke was, if need be we were walking to NYC to get that splint out! I totally can see why, the minute it came out the relief in and ON Evan’s face was evident. It was as if all the muscles in his face instantly were able to relax after two months of holding tight and making sure everything was were it was supposed to be. Seeing him comfortable and smiling for real (there were smiles in the past 2 months but this time you could tell it was asĀ genuineĀ as could be) made me smile and realize everything he went through was worth it. His teeth touch, he is slowly starting to get back to a regular diet (no steaks or bagels yet- back to an almost normal “braces” diet) and he looked so relaxed, happy, relieved, and cosmetically everything looks almost normal. Of course there was NOTHING wrong with the way he looked before (hell I dated him for almost three years that way!) but this surgery was needed for functional reasons.

As an occupational therapy student I can truly appreciate the need for meaningful participation in functional activities, and chewing/eating is an activity of daily living- something you need to be able to participate in to live. This is not to say that Evan wasn’t eating prior to surgery for 23 years but improving that function will allow Evan to participate more fully- biting into apples, chewing normally, and preventing further jaw pain.

I will now step down from my OT soap box (thanks to one professor SBK for clearly influencing that whole paragraph- Jeff OT peeps you get that!) and go back to just being the girlfriend of one amazing guy, who I am very proud of for hitting this mile stone. WOOHOO for completing Step 1 on this journey that includes at least 5 steps (two more surgeries, teeth implants, and the removal of braces left to go!) I’m so glad I get to join you on it. ā¤ Thanks to all the support Evan has had in the past two months especially- he is one step closer to his goal!

I won’t be posting for the next week as I will be working in a pediatric rehab center in Cuba (SOOO excited!)- I’m sure Ev will keep everyone updated if he has any changes!

Now without further adieu I give you 2 months post-op pictures (we are still waiting on professional post op pictures to compare! photo credits to Brittany for the hot dog pics!!!!!!)